my computer (laptop) died last week, tuesday. been online off for brief snatches, over to friends’ house twice to use her spare macbook (such as today), and brief fragments to quickly check email at job search centers. i owe too much in overdue fines at the local libraries to be able to use their computers. (and, by the way, have you ever tried to use the computers at a library? at least in the bay area, a vexing experience.)
then awesome friend, whose house i’m at, decided to give/loan me her old iphone wed evening, so started using that yesterday. i so owe her, and grateful. can at least get online, wherever there’s iphone, even without a phone plan.
saw mental health case worker for the second time tuesday. crisis mental health services for east bay county. and saw psychiatrist at that same location this past friday. i had my misgivings when i first went in, but after out hour and a half meet, where he asked extremely detailed questions, he seemed to be rather competent. he took me off the wellbutrin, and started me on tegretol. he said he wasn’t sure if i was bipolar or had unipolar depression (three-four other psychiatrist i’ve seen have diagnosed me as bipolar, so i’m sticking with that), but he suspected i had ADD in addition. sent me to have blood drawn, said it’s necessary for tegretol, and then i need to go get blood drawn again next week (after having taken a full dose of the tegretol for 5 days).
going off the wellbutrin, i initially felt grateful to be off it, felt like i had a personality again. felt really good, then hypomanic, then clearly mixed. also first five days of being off the wellbutrin, on the tegretol, violent nightmares, hugely intense dreams. now, a week after being on the tegretol, past couple days, no nightmares, though dreams are still pretty intense visually. started/ing to mellow out, though irritability developed over the weekend continues.
thoughts i’m having include the thought: what personality do i have underneath the mood disorder, instability? and realizing i had no idea.
my understanding of bipolar disorder is changing. back in my early to late 20s, i was diagnosed as bipolar 2 with psychotic features. given depakote, and a wide variety of psychotics to “control” meltdowns i’d have. in the research i’ve done recently, i’ve discovered that the two commonly prescribed drugs for bipolar, depakote and lithium, are commonly used for bipolar people with manic prevalencies. i don’t get hugely manic, tho, just hypomanic, and then mixed. the biggest problem, persistent, i have is a difficulty focusing, getting my thoughts in clear order, organizing, and then nearly omnipresent depression. so, back in my 20s, they’d prescribe me mood stabilizers meant for manic-ness, and it’d stabilize my moods to a small degree, but i’d still have meltdowns, still have trouble focusing, still dealt with instability, and still dealt with considerable depression.
so this recent psychiatrist told me about a handful of anticonvulsants that might be more appropriate for my specific type of bipolar-ness, and i brought out my little printed sheet of common ACs and their common side effects, and we decided on tegretol. he said that a number of clients he gets (mostly homeless, indigent) come in with severe drug abuse issues, and once they get off the illegal drugs he finds they had ADD, and he finds for my specific type of instability, ADD-ness, tegretol with wellbutrin he finds helpful. (i do understand he might be biased towards ADD diagnosing, but it’s a diagnosis for myself i’ve considered for a number of years.) he took me off the wellbutrin, tho, for now, cuz he wants to find out what the tegretol does on its own.
the night after my laptop died, given i’m in an empty sublet bedroom with no belongings, no books, nothing to do, i stayed up late and on 3 sheets of paper wrote out my 35 year history, marking every impulsive move to a new city, every psych med given, every diagnosis, every time fired from a job, every period of homelessness, etc. when i finished it, i looked at it and said, wow.
a year ago the partner of the friend who loaned me her iphone… this person is a case worker, and suggested i apply for SSI. i didn’t think much of the idea at the time, said, i’m not disabled, i’ve got 2 arms, 2 legs, am reasonably intelligent, etc. but then meeting with my iphone friend a week or two ago, we had a long, long conversation where i said, y’know, i’m reconsidering the disability idea. it’s not that i have CP or MS or am parapalegic or blind. but looking at that history of my life i wrote it, it was marked, heavily interspersed, month after month, year after year, a clinical picture of someone continually homeless, continually losing jobs, continually broke, continual instability, massive social connectivity issues… i wish i could post it here, so other people going thru the same thing could see it, know they’re not alone. what i wrote out showed that i am clearly dealing with something that clearly is showing that i need help.
so i contacted a local organization that helps people with disabilities, said, hey, i’m not sure if i have a disability, but i do have bipolar disorder, and i am seeing a case worker and a psychiatrist and am receiving psych medication, and i’ve got this 15 year history of homelessness and inability to keep a job and i’m wondering if i could talk to somebody. a series of going by in person, calling on phone, and i’m going back there monday for informal evaluation by the career coordinator.
also been going to the workshops, sessions at something called east bay works, they provide employment, vocational services for broke, unemployed, &/or homeless people. doing the sessions i need to do to sign up for their system, get placed with a vocational counselor. i’ll have the last session completed wed of next week.
and when i went in for my second meet with the case worker, she had me fill out an EDD form, said the psychiatrist had started the process on his own to get me set up with short-term disability. said i qualified because despite my inconstancy of employment, i worked long enough at a recent job that i’d paid into a state fund, and said i was qualified, psychiatrically, for short term disability payments. no idea when that’ll kick in. i’ve got enough $ to pay for rent for december, but after that i’m screwed. am not thinking of long-term, tho, only of the now.
being a week without a computer, it showed how being so computer-addicted as i was, it wasn’t good for me. i didn’t go out, didn’t attempt to be social. back before the computer age in my life, i used to go out dancing, hiking, did volunteer work, took free noncredit classes in art and such. since i got a computer? don’t do anything. also, given all the problems i deal with, instability and such, i realized i was creating an online persona, one of helplessness, inability, and it was circular, self-defeating. kinda don’t want to get a computer again, because off the computer, i’m accomplishing more. well, as much as a person struggling with depression and side effects from psych meds and going back and forth between psychiatrist meetings and case worker meetings and applying for food stamps and such can be.
the frustrating PT design client, i’d sent an email last monday, said, hey, the way things have been, i can’t continue working with you like that. (though said it in a nicer way.) said their expectation i was going to be available 24/7, etc, wasn’t workable. said i’d get their design job to them to them the next day, tuesday, and then if they wanted me to work for them further, we’d need to meet to discuss the working relationship.
so, of course, my laptop died the next day. and i told the person, told them to hold on. but the past week, it just hasn’t been good, i feel like a failure, seriously bad person, for not following thru with them like i said i would, guilty, but am realizing… y’know, i am dealing with a lot right now, and there is so much i am capable of. but then reconnected, said, hey, i’m working on getting a replacement for my computer, i’ll start working on your job wed (this past wednesday) and get to you wed with an estimate when the job will be completed.
this entire week i’ve been running nonstop between all sorts of meets trying to get help, and i did not get to her wednesday, nor thursday, and now it’s friday.
i took a chance, ordered a repair cd online for $30 (from what little i have to get me thru december), and it arrived today at my friend’s house. popped it in, and it said to continue, it’ll erase all my data. not having backed up my files, given how chaotic things have been this year. i’m not sure what to do. do i need a computer? am i supposed to be finishing at least this one job for the client? i don’t know anymore. all i know is i need help, and i’m doing everything i can to get the help i need, organization after organization, public assistance org, one after the other. that’s all i know, that’s all that’s in my head right now.
first meet with case worker, i said i believe i have asperger’s syndrome, and been trying to get help, a diagnosis, for 5 years. she said she wasn’t sure i had aspergers, cuz “i seemed ok to her.” psychiatrist told me, “i don’t think you have it, cuz you’re doing ok talking to me.”
but it’s like these people have the view of kannerian autism in their minds, like dustin hoffman’s character in rain man, and since i’m not like the rain man guy, i must not be autistic. none of these people i’m talking to have experience with asperger’s syndrome, have studied, or know what it is. and i’m continuing to struggle to get help, but each person i talk to says, “you seem to be ok talking to me”, which is so frustrating. look, people, i’m a reasonably intelligent person, and i am not making this up. i have been *living* this life, and you have no idea what i’m dealing with. i say the words, “i keep losing jobs because coworkers say they feel uncomfortable around me”, and they mark that down as a personality issue, something minor, not that it’s something big, something that gets me continually fired. and the disability advocacy place…
got off the phone with the woman i’m going to see on monday, about two hours ago. i’m going in so she can sit me at a computer, pretend i’m a coworker, see what difficulties i may have. and she’s a very positive, “i want to give you the support system you need” person, but the half hour conversation i had with her (the last 15 minutes of it i had a very hard time with, brain broke down, no more words, please, no more words spoken at me, i can’t take it), it was like she was telling me the same thing, it’s not aspergers i’m dealing with, a diagnosed disability, instead it’s my personality, i just need to try harder. and i have been trying, and trying, and trying, for so many years, and i’m tired of hearing people tell me there’s nothing wrong with me, i just need to try harder. and talking with her about SSI, and me saying i didn’t want to sit on my butt the rest of my life and collect a check, i *wanted* to work, but i keep getting fired from jobs and things keep falling apart… and she says to definitely look into getting any help i can, but to not be surprised if the SSI person i saw didn’t believe me when i claimed i had a disability, cuz i look reasonably well-functioning at casual glance, there are people who have a much worse time than i.
when i finally got off the phone with the woman, i grabbed my smokes, went outside, sat on the steps, and broke down crying from ragged frustration, not sure what to feel, what to think.
but i’ll be at her place monday morning to see what she proposes, cuz i need all the help, ideas i can get, and she says she can help possibly with food assistance, get me some interview clothes (i have no decent clothes to interview in by this point), and then i’ll be at the the employment help place monday, for another orientation session, and taking it one day at a time, trying to find any help i can get, cuz that’s all i can do, take it one step at a time.